The Down Syndrome Foundation Nigeria (DSFN) has called for stronger collaboration between the Federal Government and relevant organisations to promote the rights and welfare of people living with Down syndrome in the country.
Speaking at an awareness and charity walk held in Lagos with the theme “Inclusive Healthcare Support for All,” the President of the Foundation, Mrs Rose Mordi, said the event aimed to create public awareness and sensitise Nigerians on the rights of individuals with intellectual disabilities, especially those with Down syndrome.
“These individuals cannot advocate for themselves, so we must speak for them and demand their rights because they have been neglected for too long. Many die early, not because of Down syndrome itself, but because their medical issues are not properly addressed,” she said.
Mordi explained that Down syndrome is caused by the presence of an extra copy of chromosome 21 (Trisomy 21), which affects physical and intellectual development. She stressed that the condition “is not a spiritual attack that needs prayer” but a medical issue requiring continuous support and care.
Also speaking, the School Administrator of the Foundation, Mrs Hassan Chalta, said the organisation equips individuals with Down syndrome with vocational skills that enable them to live independently and contribute to society.
She, however, lamented the Federal Government’s limited involvement in advancing the reproductive and social rights of people living with Down syndrome. “The Lagos State Government has been supportive of our activities, but the Federal Government hasn’t done enough to promote advocacy and inclusion at the national level,” she said.
A parent, Mr Emmanuel Okuefem, whose daughter lives with Down syndrome, urged the public and government to view disability through a lens of inclusion and potential.
“Disability isn’t inability. Children with disabilities are useful to society, and the government must cater to their needs and protect their rights,” he said.