These Genes Foundation, an advocacy organisation, has renewed its commitment to supporting individuals living with sickle cell disease (SCD) in Nigeria.

The foundation’s relaunch event, held recently in Lagos, stressed the need for collective action to address the burden faced by victims.

Founded by the late Tosyn Bucknor, a passionate advocate for SCD awareness, the foundation continues her legacy under the leadership of her sister, Funke Bucknor-Obruthe, and the board of trustees.

Bucknor-Obruthe said, “We recognise individuals with sickle cell as champions, not warriors and our goal is to empower them to manage their condition effectively.”

The foundation provides financial relief to indigent families, essential medications for hospitalized patients, educational support, counseling and awareness programs. Key focus areas include medical, educational and financial support to improve the quality of life for people living with SCD.

Caleb Audu, a speaker at the event and a representative of the Sickle Cell Foundation, stressed the need for collaborative efforts to combat SCD in Nigeria. “Young advocates are being trained to educate the public and grassroots initiatives can extend our impact,” he said. Audu called for government’s recognition of SCD as a public health issue, effective legislation to prevent discrimination and financial support for affected families.

Serah Makka, a Sickle Cell Champion, shared her personal journey, highlighting the importance of openness and self-acceptance. “Living with sickle cell in Nigeria often means hiding one’s condition due to stigma but I’ve chosen to speak openly about my challenges, and it has helped me heal emotionally,” she said.

The relaunch event reinforced the importance of advocacy, awareness, and empowerment in addressing SCD in Nigeria. These Genes Foundation believes that individuals living with SCD can overcome the condition’s challenges and reach their full potential through collective efforts.