Group makes case for marginalised, stigmatised Nigerians with albinism

A non-governmental organisation, One House Development Initiative, has called for intensified public education campaigns to correct misconceptions that endanger the lives of Persons with Albinism (PWAs) and deprive them of their rights.

The organisation expressed concern that many PWAs in Nigeria face discrimination and stigma due to the colour of their skin. It urged governments at all levels to implement policies and orientation programmes aimed at dispelling ancient myths and superstitions that contribute to their marginalisation.

The group’s team lead, Tubosun Olabomi, made the appeal in a statement issued on Friday to mark this year’s International Albinism Awareness Day.

He noted that the United Nations designated June 13 as International Albinism Awareness Day to promote the inclusion of people with albinism and protect their rights.

Olabomi said stigma and ignorance continue to deprive PWAs of basic rights, stressing the need for education, awareness, and advocacy to dispel myths and foster inclusion.

He recommended that government health insurance schemes should cover regular medical check-ups, sunscreens, anti-blue light glasses, UV-protective umbrellas, and bowler caps for PWAs.

He also called for media campaigns to educate PWAs on skin health, sun protection, and how to access health insurance packages.

He pointed out that Nigeria, where over two million people live with albinism, still struggles with widespread misconceptions, resulting in discrimination, health challenges, and social exclusion.

Olabomi highlighted that PWAs are vulnerable to skin cancer due to extreme sensitivity to the sun and often experience vision impairments such as nystagmus and photophobia. He said lack of access to affordable sunscreen, protective clothing, and specialised care contributes to early deaths.

He added that myths portraying PWAs as cursed or supernatural beings lead to harassment, social exclusion, and, in extreme cases, ritual killings. Such stigma limits their access to education, healthcare, employment, and community participation.

The organisation stressed that these challenges fuel anxiety, depression, and low self-esteem among PWAs. It called for training for teachers to accommodate children with albinism and reduce bullying.

Olabomi also urged stronger enforcement of existing laws, such as the Violence Against Persons (Prohibition) Act, and the creation of new laws focused on protecting PWAs.

He proposed leadership training, inclusion in skills development programmes, media representation, and political participation for PWAs. He emphasised that counselling and peer support should be made accessible to help them cope with trauma and discrimination.

He concluded that albinism is not a curse or a disease but a condition that requires understanding and systemic support, adding that PWAs deserve equal rights, safety, and opportunities to thrive.

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